I keep hearing that today is the official Cerebral Palsy awareness day. Is that true? I missed last year’s Cerebral Palsy awareness day. What do I want people to be aware of about CP? In my case I want you to be aware that my brain does not see movement the same way as an able bodied person. My brain perceives distances differently. What may seem like a small step might seem like a huge hill to me.
I want you to be aware that I still have my Moro Reflex which is a baby reflex to prevent the baby from falling. My brain always thinks I’m about to fall so it tightens my muscles to try to prevent me from falling but by tightening up I am actually more likely to fall. My brain is constantly telling my body to be on guard about everything. It may seem weird but it is almost as if my brain and body remember being injured during my time in the womb and are trying to prevent me from ever being injured again.
I want you to be aware that although my brain has been injured my body itself is completely normal. I have all of the same muscles, and tendons, and bones, as everyone else and if I didn’t have my brain injury I would be able to do every single thing an able bodied person can do. Cerebral Palsy is a brain issue not a muscle issue. My physical therapists always treated my disability as a muscle problem and I believe that really hurt my progress. That being said, at least in my case my learning ability is completely normal. I get good grades etc. I am not mentally impaired. All my problems present themselves physically. One part of my brain is terrified of heights but the rational part of my brain couldn’t care less. It’s like I have 2 people inside me fighting for control over a single body.
News flash spasms are also a HUGE waste of energy.
Hope some people found this interesting.